Patient participation in medical consensus conferences
نویسندگان
چکیده
منابع مشابه
"Nothing about us without us"-patient partnership in medical conferences.
The expression “nothing about us without us” was first coined by disability rights activists to convey the idea that no policy should be reached without full participation of representatives of all stakeholders. 2 More recently, it has been adopted by patient communities seeking broader involvement with the healthcare system. Although the drive for patient involvement has come from patients, th...
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Dr John Ioannidis has spent his career challenging his peers by exposing their bad science and questioning everything from surgical habits to drug studies. He has now decided to attack a major cultural institution of medicine: the conference. In a provocative piece in JAMA (the Journal of the American Medical Association) [1] he questions the value of attending scientific conferences. It’s a th...
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Parental involvement in the education of handicapped children has been mandated with the passage of P.L. 94-142, The Education for All Handicapped Children Act. Recent research, however, has indicated that often parents are not active decision-makers in the development of the individualized education program or IEP (Gilliam, 1979; Goldstein, Strickland, Turnbull, & Curry, 1980). The purpose of ...
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minority where a parent is bent on injury to the child. The question is whether it is best to draft policies that get the best out of the majority of families, particularly when large socioeconomic factors are the ultimate root of the problem, or whether all families have to endure rigid and exclusive procedures for the sake of the minority of hostile and dangerous parents. Family participation...
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Although the importance of patient participation in the design and evaluation of health programs and services is well-documented, there is scarcity of research with regard to patient association (PA) participation in health policy decision-making processes. To this end, the present study aimed to validate further a previously developed instrument as well as to investigate the degree of PA parti...
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ژورنال
عنوان ژورنال: Annals of Oncology
سال: 1995
ISSN: 0923-7534
DOI: 10.1093/annonc/6.suppl_2.s3